TannieSpace

geekery, drawing and then some

New foods.

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I’ve tried a few gluten-free options this week, including a pre-made gluten-free bread. It doesn’t taste much like wheat-bread and it crumbs easily without having that spongey texture — somewhat like a loaf cake — but it works as a base to spread something (peanutbutter, creame cheese) on and it gave me no issues. Success!

Today I also tried some quinoa with grilled shiitakes and that didn’t go so well. I thought the quinoa did not work for me, however, on testing, it turns out the shiitake caused the problems. When I checked the date it had passed its sell by date for some time already, oops. The rest of the quinoa went well, so I’ll call it success too, hurray!

I found out it helps a lot if I keep on snacking / eating all day long. It prevents those moments I feel blown up because I ate too much. This makes it clear to me I have to stick to eating small meals, because my body can’t handle the bigger once — unlike some other people in my family.

Some time after surgery I went to see a dietician and she told me to eat at least 150 gram potatoes, 200 grams of veggies and a good chunk of meat (100-150 gram) for dinner1. This qualifies as a normal meal, for people with a stomach. This will never ever fit into me during a normal dinnertime. Apart from the amount, the time I need to eat has changed too. It takes longer. I could technically eat the above meal in around 2 hours or so. I don’t like that, I don’t want to spend more than 30 minutes on each meal, unless I go out to eat with friends. I want to have time away from food too :)


  1. This, by the way, despite me telling her at the beginning that I don’t eat meat and she still thought she had to suggest the 100-150 gram portion, and suggest it several times. Stoopid. And tiring. ↩

The medication rollercoaster

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My new rheumy — so far, very pleased — agreed that nausea caused by Plaquenil doesn’t help me. I didn’t even have to explain it, he told me to stop taking them right away and to increase my MTX. This means I need to get new pre-pared syringes.

This makes the MTX basically the only ‘real’ medication I still take, apart from the occasional naproxen or paracetamol (Tylenol).

I do take a decent load of vitamins in a medicinal way, not taking them causes plenty of issues, and they may interact with each-other / other meds so I always count them as medication.

My last blood-test showed a deficiency of vitamin D, ferritine, low B12. Still waiting for the vitamin B1.

Currently I take:

MTX once per week, as injection, for the RA folic acid once per week, to counteract the side-effects of MTX vitamin B12 once per month injection due to inability to absorb vitamin D as cod liver oil, twice per day, also comes with vitamin A, and as tiny tablets, four per day, for ‘senior citizens’ which just have D in them multi-vitamins also for ‘senior citizens’ which has extra vitamin B1, iron and zinc, twice per day calcium twice per day, with extra vitamin K and D

Mixing and matching turns into another juggling game because too many of certain vitamins (A) and minerals (iron and zinc) poison my liver, and my liver has a hard time dealing with all the other poison already, so I don’t want to push that ;)

My body needs lots of fine-tuning. *[MTX]: Methothrexate